The California Health Report spoke with disability rights experts and parent advocates about what families who speak a language other than English need to know about their rights when accessing health care and special education services, and tips on how to advocate for themselves.
Almost half of California residents speak a language other than English at home, most often Spanish.
Participating in extracurricular activities is hugely beneficial for children’s wellbeing and has been found to lower their risk of having depression and anxiety.
CoachArt is a nonprofit organization that helps chronically ill children ages 5 to 18 explore hobbies and skills through free classes, including painting, cooking, guitar lessons and martial arts.
Adults with disabilities no longer qualify for the same care, services and programs that they did as children. Instead, youth who turn 18 and their families must tackle a long checklist of tasks.
Yet with knowledge of the right resources and time to plan, this transition can be more manageable.
A critical program that medically fragile children depend on to get at-home care is broken, leaving families desperate.
This is a medical and developmental emergency for children with disabilities, and California needs to act quickly to fix it.
In 1996, a group of 10 Asian American families founded a support network for people with disabilities and their caregivers. The organization eventually became a nonprofit called Friends of Children with Special Needs.
Today it serves over 1,500 Bay Area families, about half of them Chinese American, and offers a variety of programs across three locations.
Caring for children with special needs is demanding work. Without adequate support or rest, parents can end up feeling depleted and alone.
The solution, according to experts and parents who have faced these challenges, is to reach out for help, connect with other families of children with disabilities, and prioritize self-care.
A new benefit called Enhanced Care Management offered under California’s Medi-Cal program could help parents who are caring for children with complex physical, behavioral and social needs.
However, the program — which launched July 1 — has been slow to help most families who qualify.
In California, over 98 percent of newborns are screened for hearing loss. But when it comes to intervention, there is little action to ensure these children are supported.
A bill pending in the California Senate aims to rectify problems with the state’s current Hearing Aid Coverage program and expand hearing aid access to thousands of families across the state.
When Christina Kaviani’s son, 6, doesn’t want to hug a grandparent or friend, Kaviani goes against some parenting methods and doesn’t make him.
To her, it’s a matter of consent.
As an educator on healthy relationships, consent is at the heart of what she teaches.
For children with complex medical needs, palliative care can offer physical relief and also support to families.
However, systemic failures such as a shortage of places that offer palliative care services for children, and also a shortage of physicians who do this work, lead to long wait times and administrative hurdles. The issues with the system, according to experts, can be fixed.