Since the start of the COVID-19 pandemic, finding nurses to care for medically fragile children at home has become extremely difficult, according to parents of children with disabilities and home health agencies.
The shortage has prompted calls for California’s governor and legislature to increase Medi-Cal reimbursement rates for home nurses by 40 percent.
Fetal Alcohol Spectrum Disorders are alcohol-related disorders thought to be the most common birth defects in the western world.
A recently passed California law should make it easier for children affected by these disorders to access special education services. The law goes into effect in January.
Almost all children who experience housing insecurity also experience trauma because of the stress of their situation. California and the federal government recognize this, and require schools to provide these children with additional support.
But experts believe tens of thousands of California children experiencing homelessness fall through the cracks and receive little to no help from their schools.
During the 2019-20 school year, close to 1.3 million children in the nation’s public schools were identified as homeless. But that figure may vastly underestimate the actual number. A Center for Public Integrity analysis found evidence that thousands of school districts are undercounting.
Experts who spoke with Public Integrity said that confusion surrounding the McKinney-Vento law and who qualifies as “doubled-up” can leave many students unidentified and not receiving the support they need in school.
The state cut funding for social and recreational services for children with disabilities 13 years ago, which meant regional centers could no longer pay for summer camps, swimming lessons and other recreational programs for children with disabilities.
Now the centers have to figure out how to reinstate them, which has led to glitches for families trying to access these services.
Many families that foster and ultimately adopt children with disabilities encounter challenges such as receiving insufficient medical supplies to care for the children and incomplete information from child welfare agencies about the children’s health histories.
Foster families and their advocates are working to mend the gaps in the system that can cause undue stress on these children who, in most cases, have already been through trying times before coming into foster care.
A coalition of Latinx parents is suing Harbor Regional Center, alleging discrimination against Latinx children and adults with disabilities and demanding more services.
The lawsuit accuses the center of routinely dismissing Latinx families’ requests for help, of providing less comprehensive services than needed, and of burdening families with unnecessary requirements as well as failing to adequately inform them when services are canceled or changed.
Research shows children with chronic illnesses are at least twice as likely as healthy children to develop a mental health disorder. They’re at higher risk for neglect and abuse. Their caregivers and siblings are also at increased risk for mental distress.
Yet there are few mental health treatment programs that cater to the needs of these children and their families. The MEND program at Loma Linda University is an exception.
Climate change is a growing threat to people with disabilities. Not only is the weather getting hotter, but Californians are facing more frequent wildfires, poor air quality, evacuations and power outages. These events are particularly difficult to navigate for people with complex medical conditions and those who care for them.
Yet, researchers and policymakers have historically overlooked this vulnerable population when it comes to emergency planning.
Throughout the pandemic, medically fragile children in California’s pediatric long-term care facilities and their parents have endured drastic limits on their ability to see and interact with each other. Some locations barred parents and other caregivers from visiting their children in person for over a year, citing virus safety precautions.
Advocates and parents said they’re concerned that visitation policies at pediatric subacute units during the pandemic may have caused long-term harm to kids.