Thousands of parents across California are caring for children with physical, behavioral and developmental conditions. They typically rely on a small army of teachers, therapists, nurses and other caregivers to get through the week. But that has been stripped away due to the COVID-19 pandemic.
Parents are feeling isolated, stressed and overwhelmed at a time when families need more support than ever to deal with a loss of routine, heightened anxiety and other challenges.
As COVID-19 disrupts the transition from early intervention to school, children are going without occupational, physical and speech therapies and other services they’re entitled to.
The danger, advocates for children with special needs said, is that these kids are missing out on interventions at a critical moment in their lives. Since mid-March, California’s complex special needs care system has struggled to move children from one program to another, parents and advocates said.
Home visitors provide one-on-one outreach to parents who may be struggling to care for their children, often because of stressors such as poverty, or who simply want guidance.
Home visiting can help counter inequalities, which arise from structural racism and economic disadvantage. Yet fewer than 2 percent of potentially eligible families statewide receive home visits.
Amid the COVID-19 pandemic, demand for ventilators and accessories has soared. As a result, families caring for medically fragile kids are being forced to ration and even reuse parts.
At least 3,000 children in California rely on ventilators, according to the California Association of Medical Product Suppliers, and many of them are facing a shortage of the supplies that help keep them alive.
The complicated system creates a disparity where children from families without the means to pay for medical equipment out of pocket often must go without it for months or years, limiting their interactions with their community or setting them up for poorer health outcomes compared to their wealthier peers.
The equipment families seek includes lifts, wheelchairs, walkers, ventilators and hospital beds.
Under a state law that took effect in January 2018, counties are no longer supposed to charge fees to youth involved in the juvenile legal system, or their families.
However, a recent study found that some counties continue to illegally collect some prohibited fees. Others are chasing young people and their families for debts they incurred before the law took effect.
California health officials are gearing up for the launch of a statewide screening effort that aims to help doctors measure children’s exposure to trauma and their risk of related health problems.
Starting Jan. 1, California will become the first state in the nation to reimburse health care providers who screen patients enrolled in the Medi-Cal program for “adverse childhood experiences” or ACEs.
Across California and the country, families with children with complex medical needs struggle to find qualified nurses to care for them. Historically low pay rates for home health nurses, a lack of pediatric training for in-home situations, and a disjointed system for finding caregivers has left many families without the nursing care their children desperately need and are entitled to, experts said.
More than 72,000 children in California could suffer long-lasting health consequences if a federal program that shields their parents from deportation is repealed, experts warn.
Alejandro Campos Robledo, a DACA recipient, and his 11-year-old daughter Giselle, are two Californians who would be affected if the program is rescinded.
Newly released data reveals that more than a quarter of California children in foster care don’t receive timely medical or dental exams, increasing their risk of having health problems that go unaddressed.