Health care and disability rights advocates are gearing up to make sure politicians understand that there is no way to cut Medicaid without hurting people who need care. Sharing real people’s stories will be key to that effort.
California Health Report’s disability rights columnist Jennifer McLelland offers her tips on how to tell your family’s story.
The complicated system creates a disparity where children from families without the means to pay for medical equipment out of pocket often must go without it for months or years, limiting their interactions with their community or setting them up for poorer health outcomes compared to their wealthier peers.
The equipment families seek includes lifts, wheelchairs, walkers, ventilators and hospital beds.