Thousands of families lost their homes that swept through Los Angeles County in early January. Local and state disability advocates said they have been checking in with families and trying to provide support as they adjust to life after the fires.
children’s health
Amidst a nationwide shortage of pediatric specialists, families caring for children with special health care needs in rural areas are often forced to travel long distances for care.
Physicians and parents agree that on top of bringing more specialists to rural areas, increasing the flow of information between agencies and making travel reimbursements easier to attain would ease some of this burden on families.
California has multiple programs that provide support to children with complex medical needs and disabilities. But accessing and making use of these programs is a minefield for many families.
Vivian Vasquez and John Hernandez discovered that for themselves after their daughter, Claire, was born with a rare genetic disorder.
For me, the most important thing about the holidays is food. I love cooking almost as much as I love eating.
But that perception was challenged when my son, James, was born with medically intensive disabilities. I wanted my son to have a positive relationship with food, even though he is fed through a tube. To do that, I had to tackle my own emotional baggage about what it means to feed my family.
In California, over 98 percent of newborns are screened for hearing loss. But when it comes to intervention, there is little action to ensure these children are supported.
A bill pending in the California Senate aims to rectify problems with the state’s current Hearing Aid Coverage program and expand hearing aid access to thousands of families across the state.
For children with complex medical needs, many parents are told that institutionalization — care that is provided in a location other than home — is the only option.
While spending time in acute care hospitals may be unavoidable, more could be done to allow these children to stay at home, instead of forcing them to live in institutions.
California has become a model for ensuring schools can provide nutritious breakfast and lunch for all students without accruing district debt and stigmatizing students whose families can’t afford to pay.
Students in Upland Unified School District, where I work, not only get to grow and taste their own food in our school gardens, they also get to taste new fruits and veggies through a Harvest of the Month program.
Children who need medically intensive care cannot attend traditional day care programs. California has an option for these kids, called Pediatric Day Health and Respite Care facilities.
But the amount the government pays these facilities to care for children has not kept pace with inflation and rising staffing costs. Because of the stagnant rates, California’s pediatric care facilities are in danger of closing.
Our house lost power a few nights ago, during one of 2023’s record-setting storms. For our family, losing power is a medical emergency.
But on this occasion, for the first time, I had access to a portable power station. Portable power stations are rechargeable batteries that can provide hours of backup electricity, which is especially important for people who use medical devices or assistive technology.
Too many families must fight health plans to get mental health care for their children. The process to get care is often time-consuming, confusing and burdensome.
That is why we are sponsoring Senate Bill 238. Under this bill, parents will no longer have to appeal health plan decisions through the arduous Department of Managed Health Care process.