My son is able to live at home with our family, attend school and interact with the world because we live in a nation where disabled people have civil rights.
When I hear President Trump talk about eliminating diversity, equality, inclusion and accessibility, he’s not just attacking civil rights for disabled people — he’s sending a message to kids like my son that they don’t belong.
For children with complex medical needs, palliative care can offer physical relief and also support to families.
However, systemic failures such as a shortage of places that offer palliative care services for children, and also a shortage of physicians who do this work, lead to long wait times and administrative hurdles. The issues with the system, according to experts, can be fixed.